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“We Are Visible” – Free Showing of Documentary about Ehler’s-Danlos Syndrome
January 5, 2020 @ 2:30 pm - 4:00 pmFree
The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body.
We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications while searching for a diagnosis, over misdiagnoses and their harmful consequences, but also the daily challenges EDS patients face, and the differences in accessibility of care depending on the area they live at. My documentary focuses on the one thing that unites all patients: Their never-ending endurance to overcome those obstacles and to thrive. It conveys the hope and strength with which EDS patients fight for a better quality of life and care.
Boulder Public Library Main Branch
Boulder Creek Room, 1st floor
Doors open at 2pm, screening begins at 2:30pm
– Hosted by the Boulder EDS Support Group on Facebook
Contact Nancy Ramsdal on Facebook, or Ambynyc@gmail.com